“I am Stephanie. And I am not my body.”

In MS, Multiple Sclerosis on May 23, 2010 at 9:56 pm

Whenever I start feeling sorry for myself, I turn to NieNie.

Do you know NieNie?

That’s a nickname for StephaNie Nielson.

NieNie began a blog in 2005 that, on the surface, might seem ordinary–a mom being a mom. But there was something special about NieNie, in the way she expressed sheer pleasure in the mundane tasks of motherhood, like snapping a photo of her kitchen sink clogged with Cheerios. And laughing about it. NieNie reminded me to have more fun as a mom.

Fast forward to August 2008 when NieNie and her husband were in a plane crash. She was in a coma for three months and suffered burns all over her body, including her face. She’s in constant pain and even minor tasks–like zipping up her daughter’s parka in the freezing cold–can become struggles.

But NieNie is thankful for her life–and she knows her new life holds more meaning and purpose. I’m Jewish, not Mormon like NieNie, but her message is powerful and applicable to anyone who is going through a rough time in life, especially those of us living with a chronic illness.

I offer to you NieNie, in her own words.

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